Tener una enfermedad infrecuente llamada CBP me enseñó a decir lo que siento

English

As stated Erica Rimlinger

In my annual physical examination in the spring of 2002, my Sagre tests did not reveal normal complete results. «His liver function is not great,» said the doctor. «Let’s give him a year, and if there is still no normal hay result, we will do something about it.» I didn’t think much about that. He had no symptoms that were worth taking into account. I send tired, of course, but isn’t that the case of most people?

The following year, when the results of my blood tests were suspicious again, my doctor called me and left a message in my work, saying that he wants me to try to see the had hepatitis. She was surprised and very confused: she had no risk factors. I was sure that my doctor had made a mistake.

A few months later, I started working in another company. I had to wait to have the coverage of my new medical insurance and had not worked enough time to ask permission for the doctor anyway.

But health problems do not always occur at convenient times regarding insurance coverage or permissions. One day in my new job, I had a gastric episode that kept me in the bath for 45 minutes. There was so much blood that I thought I should be bleeding Intername.

Once I recover the consumption of the composure as to retrieve my desk and call my doctor, I had to ask all my New Men’s colleagues: «Can someone take me to the hospital?»? » «There was panic. After discussing who had the keys, a hospital in Seen was going to go and who was going to call my parents, one of my vacancas drove his car at the head of the building and took me, quickly quickly in the incorrect dirrection, to the hospital. Try to keep calm in the middle of the whole chaos, but inside, he was dead of fear.

The hospital, the tests did not reveal any key to the cause of the episode. They told me that a consultation with a gastroenterologistThat is, UN Doctor Gi. I had the consultation the week before Christmas and told me that I thought I had primary bile casting or CBP. As part of the diagnosis, the doctor requested a biopsy Hepatic for confirmation and said that in his 30 years of practicing medicine, he had only seen another person with this disorder.

What was the CBP? My mom and I started crying in the car outside the doctor’s office, Hacienda Searches on the Internet with our phones. I read that I could need a liver traasplante and that the CBP would cut my life expectancy. I didn’t know if I was going to live or for Cuknto time. We do not reveal it to Nieie, except for my husband, until the holidays. I didn’t want to ruin Christmas.

The biopsy confirmed that I had CBP and started taking a medication that would be the only treatment available for CBP for me for many years.

Some people have symptoms that give way to their CBP diagnosis, but for me it was not so. After I diagnose, a sen embargo, I started an experimental tomb diarrhea, making my normal daily activity impossible. A memorable incident caused me to be crouched on squatting under an umbrella under the rain of a highway. With the help of my husband and family, I handled it, ethically managing systems and tools to deal with this difficult situation. With the hope of improving my health, I at some point a surgical revascularization in 2007, thinking, in an unrealistic way, that the loss of serene -orntil weight for solionauda all my problems. It was not so.

ABBY AND PBC GROUP2022

I stopped focusing my energy in unlikely fantasies and understood that I should live With my cooling, not survive alone. I started with the meeting of former students of my school that was about to be held. In high school I was very shy: I did not participate in activities and was very reserved. But now I understood that I should change. I offered help to plan the meeting and the meeting committee awarded a new award that year: the Mariposa Award. I won it by my transformation. I knew I was going in the right direction.

I started with my activism work, which I still do today. Every month of fever of each year, I go to the Capitol to advocate for priests of infremed diseases. My goal is to do more every year until there are unusual diseases without cure.

After some time, the medication for the CBP that was taking for many years stopped working as well as it used to do and the results of Sangur’s tests showed my hepatatic function starting. My gastroenterologist was retiring, but speaking, they are living with CBP, I found a doctor who prescribed a new medication that turned out to be good for me.

Then the FDA [Administración de medicamentos y alimentos] He took some measures that affected my ability to obtain the medication. I took advantage of the skills that I recreated that I had advocacy and activism when I testifies to the FDA a favor of the medication. After the audios, the FDA implemented steps for the medication to remain dissonable. They heard.

My experience with infrequent chronic cooling taught me a found it in any difficult situation. Now, I hope that there are new discoveries with which this disease can be better understood. I would like more people with CBP to know they have therapeutic options. There is no cure, it is true, but can Aircraft to do.

You can enjoy your life and be an integral person, not just a statistic. I have CBP, but that cooling does not define me and I do not let it be sitting. Lidying with chronic infrequent cool has been useful to discover security and confidence in myself that I did not know before.

This educational resource was prepared with the support of Gilead.

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Our stories son Authentic experiences of real women. Greetings do not endorse the points of view, opinion and experience expressed in these Hystems and do not need the policy or positions of healthy health efficient.

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